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July Amyloidosis Event Calendar

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Jul 1

Wed

6:00 PM – 7:00 PM

Jul 1 Wed 6:00 PM – 7:00 PM

Amyloidosis Session: Venetoclax: 2nd line options for relapsed AL Amyloidosis

Presenter: Dr. Michael Rosenzweig, MD, MS

Click to Register

Jul 2

Thu

6:00 PM – 7:00 PM

Jul 2 Thu 6:00 PM – 7:00 PM

Rare Disease Session: Living with Uncertainty: Coping When You Don't Know What's Next

Presenter: Diana Linn, PsyD, MFT, CMH

Click to Register

Jul 6

Mon

6:00 PM – 7:00 PM

Jul 6 Mon 6:00 PM – 7:00 PM

Rare Disease Session: Navigating Clinical Trials: A Patient's Perspective

Presenter: Thomas Bartlett, Patient Advocate

Click to Register

Jul 8

Wed

6:00 PM – 7:00 PM

Jul 8 Wed 6:00 PM – 7:00 PM

SAVE trial towards earlier diagnosis: SAVE trial towards earlier diagnosis

Presenter: Dr. Lisa Lee, MD

Click to Register

Jul 9

Thu

6:00 PM – 7:00 PM

Jul 9 Thu 6:00 PM – 7:00 PM

Relationship Support Session: The Invisible Weight of Chronic Illness: Reclaiming Your Emotional Energy

Presenter: Diana Linn, PsyD, MFT, CMH

Click to Register

Jul 13

Mon

6:00 PM – 7:00 PM

Jul 13 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: Become the CEO of Your Healthcare

Presenter: David Gusick, Patient Advocate

Click to Register

Jul 15

Wed

6:00 PM – 7:00 PM

Jul 15 Wed 6:00 PM – 7:00 PM

Amyloidosis Session: Second-line treatment options: the COH experience with bispecific antibodies for AL amyloidosis

Presenter: Dr. Sarah Lee, MD

Click to Register

Jul 15

Wed

6:00 PM – 7:00 PM

Jul 15 Wed 6:00 PM – 7:00 PM

Amyloidosis Session: ATTR Newly Diagnosed Patients Onboarding Session

Presenter: Dr. Stacey Goodman, MD

Click to Register

Jul 16

Thu

6:00 PM – 7:00 PM

Jul 16 Thu 6:00 PM – 7:00 PM

Relationship Support Session: Part 1: Making Meaning from What Has Been (Past)

Presenter: Hamide Eygoren, MAPP

Click to Register

Jul 20

Mon

6:00 PM – 7:00 PM

Jul 20 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: Taking Control of Your Health Care: Navigating and Maximizing the Patient Portal

Presenter: Tricia Walker, MSN, FNP-C

Click to Register

Jul 22

Wed

6:00 PM – 7:00 PM

Jul 22 Wed 6:00 PM – 7:00 PM

Amyloidosis Session: Diagnosis of Cardiac Amyloidosis

Presenter: Dr. Faizi Jamal, MD

Click to Register

Jul 23

Thu

6:00 PM – 7:00 PM

Jul 23 Thu 6:00 PM – 7:00 PM

Rare Disease Session: Part 2: The Passion That Sustains You (Present)

Presenter: Hamide Eygoren, MAPP

Click to Register

Jul 27

Mon

6:00 PM – 7:00 PM

Jul 27 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: The Importance of Communicating with Your Health Care Team

Presenter: Edelyn (Ed) Yhip, RN, BSN

Click to Register

Jul 29

Wed

6:00 PM – 7:00 PM

Jul 29 Wed 6:00 PM – 7:00 PM

Amyloidosis Session: The role of upfront autologous SCT for primary AL amyloidosis

Presenter: Dr. Tibor Kovacsovics, MD

Click to Register

Jul 30

Thu

6:00 PM – 7:00 PM

Jul 30 Thu 6:00 PM – 7:00 PM

Rare Disease Session: Part 3: The Hope You Can Build (Future)

Presenter: Hamide Eygoren, MAPP

Click to Register